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Sweden issues genetic testing guidelines to aid healthcare staff facing ethical dilemmas

This article was originally published in Clinica

Executive Summary

Children should only undergo presymptomatic testing for a hereditary genetic disease if effective treatment exists for the disease, say new guidelines from Sweden's National Board of Health and Welfare. The guidelines, included in a report published last week on the ethical issues involved in genetic testing, recommend that informed consent should always be obtained before genetic testing takes place and that psychological support is made available to patients and their families.

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