UK genetics and insurance committee established:
This article was originally published in Clinica
Executive Summary
The UK Department of Health has set up a Genetics and Insurance Committee in response to concerns over the use of genetic tests by insurers. Its terms of reference are to develop criteria for the evaluation of genetic tests, their application to particular conditions and their reliability and relevance to insurance; to evaluate tests against those criteria; and to report to government ministers on proposals from insurance providers and the level of compliance by industry with the committee's recommendations. Work has already begun on a mechanism to assess the use of tests for rare genetic disorders, including Huntington's disease.